National charity Rett UK is celebrating 30 years of incredible support for families living with Rett Syndrome, and as part of their celebrations they are hosting a charity vintage tea party at The Grand Hotel in Brighton.
The ‘High Tea & High Heels’ event on Friday, 31 July 2015 is set to be a glamourous girls and guys afternoon out with champagne, live music, fantastic auction prizes and – of course – a high tea! A limited number of tickets are available for lads and ladies who love the opportunity to get their posh frocks on, join the party but this time they can also support an organisation who give vital support to these families.
Local parent, Becky Jenner has a daughter Rosie, who was diagnosed with Rett syndrome when she was 17 months old. The organisation Becky turned to for help was Rett UK; the national charity that provides support, information and advice for families dealing with Rett syndrome.
Becky, CEO of Rett UK, explained, “ Imagine being told the toddler you thought was healthy, albeit a bit slow to develop, in fact had a rare, complex disability that would leave them needing lifelong 24/7 support .. that is the reality for parents when they get a diagnosis of Rett syndrome. With your help, Rett UK can be there from the beginning.”
After Rosie’s diagnosis, Becky went on to do a business degree and then started the charity, ‘extratime’ in Brighton with another parent, Marian Tipler, whose son also has a complex disability. Together, they developed extratime which still continues to provide after school clubs, holiday play schemes clubs and youth projects. However when the opportunity arose last year to become the CEO of Rett UK, Becky applied, as this was a unique opportunity to give something back to the charity that had saved Rosie’s life and supported her and her family many times for nearly 20 years.
Now as CEO, Becky is raising awareness of the amazing work the charity does and the ‘High Tea & High Heels’ event is part of their 30th year activity. The event will feature a silent auction with prizes donated by The Spread Eagle Hotel & Spa and other luxury brands as well as live entertainment from Brighton singer, Dean Wheedon and it looks to be a very a ‘grand’ afternoon for all involved.
Rett syndrome affects about 1:12000 girls, rarely boys, and whilst it is present at birth it does not show itself until around the age of a year or eighteen months when after a period of regression the disability starts to become apparent. Sufferers often require 24/7 lifelong care because of the complexity and severity of the disorder; breathing dysfunction, epilepsy, scoliosis (curved spine), severe learning and physical disabilities are a feature of the disorder.
To enjoy a rare afternoon out in the comfortable surroundings of The Grand – and raise money for this worthwhile cause go to EventBrite, www.eventbrite.co.uk/e/high-tea-high-heels-tickets-17063717037 for tickets or call 01582 798910. Tickets are priced at £35 per person and all proceeds go to supporting the work of Rett UK.